Transcript for The Greatest Loss
SPEAKER_00
00:00 - 00:07
This podcast is supported by Evernorth Health Services.
SPEAKER_02
00:07 - 00:36
I've heard it said that the greatest loss a human being can experience is the loss of a child. This is true. The person you were before you will never be again. It doesn't just change you. It demolishes you. The rest of your life has spent on another level. The level of those who have lost a child.
SPEAKER_03
00:36 - 01:59
My mom said that a few years before she died, and for her it was true. She was demolished by my brother's death, and she felt the pain of it every day. But she was able to feel other things as well. Love, enjoy, fulfillment. She didn't just survive. She lived for 31 years after my brother's death. She worked. She painted, she wrote books. And she was able to do all that because she could talk about my brother's death and about him. And she could do it without the quaver in her voice, the sense of vertigo that I still get when talking about what happened. There was a loss, however, my mom didn't talk about. something I only learned decades after my brother's death. My mom had lost another child, one I never knew about. She'd had a miscarriage. I think it was in 1965 after my brother was born and before I came along. When I did finally ask her about it, she didn't say much, and I didn't want to press. It's interesting to me that my mom, who rarely spared me the details of any aspect of her life, had kept her miscarriage hidden. I was never sure why, but then I listened to the voicemail messages from the end of last season, and so many of you spoke of the babies you lost, and society's silence surrounding it. The friends and family who didn't know what to say, or said nothing at all.
SPEAKER_04
01:59 - 02:12
Thirty-five years ago, I lost my only child, my name is Catherine. I lost the pregnancy at 12 weeks, and the grief As sound as me, I didn't think I was allowed to grieve.
SPEAKER_08
02:12 - 02:16
My husband and my boss are first baby as six months pregnant.
SPEAKER_07
02:16 - 02:30
Last, my second child, who were really rare genetic conditions for Friday was telling me, it's just, I'm as care as just get over it. I will never get over it. I just have to get on with it. Get on with the living.
SPEAKER_03
02:30 - 02:51
My mom must have felt that pressure as well back in 1965 when she had her miscarriage. One caller pointed out to me that the idea of apparent losing a child is so unspeakable, no word in English has been invented to describe it. We have words like orphan and widow, but nothing for a mother or father whose child has died.
SPEAKER_08
02:51 - 03:25
Making the loss of the child this kind of taboo subject where you don't talk about the person you don't bring them up. I actually think that that should make living with it more difficult. My grief. is useful to other people who are in grief and their grief is useful to me. Sort of like driving in a white-out snowstorm. If you see the bare headlights in front of you, it helps you feel like there's a path that you are on and there is space to move forward.
SPEAKER_03
03:27 - 03:36
That is what all of us are looking for, isn't it? A space to move forward. This is all there is with me, Anderson Cooper. We'll be right back.
SPEAKER_00
03:43 - 05:20
All there is with Anderson Cooper is supported by Evernorth Health Services. Grief is a human experience. Shouldn't the care we receive feel human too? That's why Evernorth Behavioral Health ensures all members have access to live, specialized support any time, in person or virtually, with a 100% follow-up commitment to make sure that they get the help that they need. So no matter what stage of grief your employees may be in, there's always a person ready to listen. Stressful times can lead many to bottle-up complex feelings, especially at work. 59% of those suffering say nothing. This can have unexpected and serious mental and physical health implications. And with Evernorth's data-driven risk monitoring tools, they can help spot challenges early and step in to guide individuals to care before they undergo any more suffering. Each person's grief is as unique as they are, which is why Evernorth offers a wide range of personalized behavioral solutions to meet the needs of every member that they serve. Learn more at Evernorth.com slash grief support. Greath is a human experience and the care we receive should be too. Evernorth behavioral health ensures all members have access to live specialized support in-person or virtually with a 100% follow-up commitment to make sure they get the help they need. There's always a person there, guiding your employees using data-driven risk monitoring tools so bottled up feelings don't turn into further suffering. With Evernorth's wide range of behavioral solutions, care can be personalized, simple and more accessible. Learn more at EverNorth.com slash grief support.
SPEAKER_03
05:20 - 05:33
Welcome back to All There is. My guest for this episode is Katie Tolman. She lives in Texas and left me a voicemail last year about her daughter Everley. I'm going to play a part of that message now and then talk with her.
SPEAKER_06
05:33 - 06:23
I lost my daughter Everley for years ago. I was pregnant with her and I found out that I'm very likely that she wasn't going to make it. I had a choice And I chose to roll the dice. She was my first baby, and I wanted her. I mean, it has, everything was still born. But throughout the pregnancy, I've prepared myself as much as possible. But what I learned is that nothing absolutely nothing could prepare me to deliver a silver and baby to holding a baby that come out and didn't cry. I couldn't have been prepared for How loud the silence was in that room. Nothing could have prepared me for the overwhelming feeling like I needed to run somehow to the other side of the world to go find her.
SPEAKER_03
06:23 - 06:29
That was this a year ago for more that you left that message. Do you feel different than that person today?
SPEAKER_05
06:31 - 06:49
I do, and I don't, because as you know, it's not a linear thing. Just listening to that voice mail. It sometimes doesn't feel like it's me. I think I still am taking in my story and understanding it and getting through it.
SPEAKER_03
06:49 - 06:51
What age did you know you want to be, Mom?
SPEAKER_05
06:52 - 08:38
I remember in fourth grade, our teacher asking what we wanted to be when we grow up, and I said, a mom. And I remember people laughed at me. But it's what I always wanted. I just, It was, it is my heart's desire to bring children into this world and I've always wanted a little girl and I was 28 years old when I got pregnant. We were pregnant with twins and there was baby A and baby B and they just named them just off of location in the womb. And then at nine weeks we found out that baby B had died. My miscarriage is called vanishing twin syndrome where your body absorbs it. So I had no cramping, I had no bleeding. It's just, I was told one day I was having twins and I was told another day I wasn't. And then a few weeks later, 12 weeks, we went to see the maternal fetal medicine specialist. And I had no idea what was about to happen. The sonographer got really quiet. They found fluid behind her neck. Instantly, the mood and the room changed. The air changed. They took the sample from my placenta and tested it and they let me know that my baby had turned her syndrome. Her second ex chromosome was missing and I would likely miscarried. Most babies that are diagnosed with Turner syndrome die within the first trimester. And so I expected that. Everley made it a lot longer. She made it until she was 23 weeks and three days.
SPEAKER_03
08:38 - 08:45
What was your decision-making process? When you heard the news, there's a 1% survival rate for babies with Turner syndrome.
SPEAKER_05
08:46 - 09:16
I started to try to rationalize in my head that, well, maybe the, maybe the statistics are wrong. I chose to keep going. I wanted to see it through, but it was really hard. Every single appointment, her swelling increased and it was impacting her organs. She wasn't doing what a baby is supposed to do, like grow. I never got to feel her because she couldn't move. Her kicks weren't strong enough for me to feel her.
SPEAKER_03
09:16 - 09:23
If you and your husband bought a Doppler machine so you could hear her heartbeat.
SPEAKER_05
09:23 - 09:31
Yes, that's the best thing we did. We started doing it every single day as a good morning and a good night.
SPEAKER_03
09:31 - 09:36
This is the sound they heard. It's ever like her heart beating.
SPEAKER_05
09:39 - 09:50
I have every single one recorded half of them all and I have the last one too. We were really lucky to have that out of our disposal. Use it all the time.
SPEAKER_03
09:50 - 09:55
Is that how you learned that her heart had stopped?
SPEAKER_05
09:55 - 10:11
Yeah. We had just been to our 22-week appointment and it was devastating. This was the appointment that made me drive to cemeteries to try to find the right place for her.
SPEAKER_03
10:11 - 10:17
You actually had to go to funeral homes and cemeteries while you were carrying heavily.
SPEAKER_05
10:18 - 12:23
Yeah, I did. And I went by myself, Tyler, my husband couldn't do it. He just couldn't do it. So I went to three different places because I knew that when a baby dies and you are at the hospital, before you leave, you have to know where the body's gonna be sent. So I needed to research that and I needed it to be perfect. So that was hard talking to, you know, the funeral directors that are trying to sell you something and you still have a living baby inside of you, but you're looking for their home. Just awful. So when we were going to bed that night, her heart rate sounded so strong. She sounded wonderful. My husband and I were talking about how probably we were of her that night and my husband and kiss my stomach for we fell asleep. Which just I'm so happy he did. And when we woke up the next morning, the same Patrick's Day. I woke up first and that feeling when the power goes out in your house and it just sounds different. and we just knew. I don't know how, we just knew and we put it on and we heard nothing. It was silent and Tyler searched and he searched. And we knew we just needed to go to labor and delivery. And that's when I met Carol. She is a nurse that specializes in bereavement. And she tried and, again, it was silent. And we could see her. But there was no heartbeat. The worst words ever. There was no heartbeat.
SPEAKER_03
12:30 - 12:37
You talked about the loudness of the silence in the delivery room.
SPEAKER_05
12:37 - 15:47
Yeah. I was just trying to survive. It was like I was in somebody else's body. This was my first experience with having a child with a labor. And so they give you medicine to induce labor. And when everything started to work, and Evelie was getting closer, I absolutely panicked. You know, I just wasn't ready for her to leave because once she was going to be out of me, I had very little time left. So I was really holding in, I was holding in so much, so much fear and devastation, also holding on to a little bit of hope that somehow everyone was wrong. And when Everley came out of me, I screamed and let out this like a primal moan. that was that was everything that I had been holding in. And it was then that I knew that I had lost and that I was wrong. And that she was never coming and it was never going to be true. And the room was so silent. My doctor was whispering. My nurse wasn't talking. You can hear the hustle and the bustle and the hallway of all the nurses and the families being wheeled around and the babies crying and then my room was so dark and empty and sterile. It was awful. It was awful. But then I don't know if we've ever had something like a situation where you feel so much pain and so much grief and then... And almost the next breath, you feel so much pride and joy. When they first handed Evely to me, I was distraught. And then I looked at her, and I saw her features under all of her swelling. And I was filled with so much love for her. And again, the pride and the joy and this overwhelming peace came to me. And, you know, I think that's a God thing, and that was the biggest gift to receive in that moment, so that I could be there and to really treasure that moment that I had with her, that very small window. I'm glad that I was able to feel that peace while I was there with her.
SPEAKER_03
15:47 - 15:51
And she had felt that peace in the love from you, all her life.
SPEAKER_05
15:52 - 17:12
Yeah, Meg. I believe that so I have to believe that I have to believe and know that while I really was in me. All she knew was love that she was never hungry. She was never cold. She was never hurt. She was never disappointed. She knew my voice. She knew her dad's voice. She knew the songs we'd play. She knew the light we'd shine on my belly. She only knew love. She wants straight from me to heaven. She's in the best place. Possible. And I have to keep telling myself that and reminding myself that even if I was given the opportunity to have her back, I couldn't. Sometimes I mean, I need to convince myself of that. But I know that she is where I ultimately would want her to be. That is what my faith tells me is that she is whole and restored and happy and perfect. And that helps. And it helps to know that one day I will see her again. And you know, we'll have that hug and embrace that, you know, I'll never have to let go of. I'll never have to.
SPEAKER_03
17:18 - 17:22
How long did you stay in the hospital after the birth?
SPEAKER_05
17:22 - 17:41
We got to stay there overnight. Our hospital had what's called a cuttlecott, and it's a temperature-controlled cot, so that when you're not holding the baby, you can put the baby down to slow down the deterioration. It's a beautiful and heartbreaking thing to have.
SPEAKER_03
17:41 - 17:45
The cuttlecott is four babies born still born.
SPEAKER_05
17:45 - 17:46
That's for dead babies.
SPEAKER_03
17:47 - 17:49
So you spend the night with her really?
SPEAKER_05
17:49 - 18:11
I got to spend the night with her holding her and I rocked her and I sang to her and I sang you on my sunshine and I read her verses and I kissed her and kissed her and kissed her and kissed her.
SPEAKER_09
18:11 - 18:42
And then they took her and she went that way And then I would be the other way. And I just don't know how I did it just like run after her. They gave me a box and it had stupid pamphlets in it. And I don't know what are my discharge papers and said stop taking your prenatal vitamin. So messed up.
SPEAKER_05
18:45 - 18:55
So she, she went down the hall to the right and the eye was wheeled out to the left.
SPEAKER_09
18:55 - 19:00
And I, I, I may have had a little bit not spending more time with her.
SPEAKER_05
19:00 - 19:02
And I regret not running after her.
SPEAKER_09
19:02 - 19:12
They're just telling the person, no, you were not taking her and she's my. But.
SPEAKER_05
19:18 - 19:24
But I knew that I couldn't take her home. I knew I couldn't do that.
SPEAKER_03
19:24 - 19:34
Just as Katie said that nothing could have prepared her to deliver a stillborn baby. She also was not prepared for some of the responses to her for these death by others in her life.
SPEAKER_05
19:35 - 22:30
You know, I've found that many of my friends weren't able to be there for me and my family, honestly. Because it's not something they wanted to talk about. You know, it's unspeakable, losing a baby, delivering a dead baby and having to bury a baby is unspeakable. They weren't comfortable with the rawness of it. It was too much for them. And then also there were friends that would try to say something, but then what they said hurt so much. I don't think there's anything good that comes from a sentence that starts with at least. At least you can get pregnant. At least you can have another baby. At least didn't go on any further. Yes, I was happy that that I could get pregnant again, but that did not erase everly. And I was at a grocery store. And I remember looking around, feeling like nobody could see me, and I was just screaming inside. And really, I just wanted to talk about her. I wanted to have permission to speak about her, because I felt like I wasn't allowed to. I was supposed to sweep that under the rug like it never happened. and it was all of me. So, friendships changed the dynamics of my family changed. Some of that was protecting myself because I didn't want to be told to hurry up and have another baby so I can be grandma less than two weeks after my baby was buried. Somebody said that to you. Yeah, with a smile on their face. Hurry up and have another baby so I can be grandma. Really all I wanted to do was just be around people that got it. That had been to that depth, that pain, and that figured out how to claw their way out of it and survive. That's what I wanted, and things got dark. Things got pretty dark at times. I wanted to kill myself. And I almost did it when I was driving. I was going to drive off the road. I thought about the bathtub and I went under and I couldn't do it. And a lot of it was because I was so terrified that maybe I would be punished and I wouldn't be able to see her again. But I just wanted to feel, I mean, I was I was hurting so bad, I wanted it to stop, and I wanted to feel something else. And I never, I didn't talk about that for a long time. I'm not ashamed, but I guess in a way, I kind of am. It was really overwhelming.
SPEAKER_03
22:32 - 22:51
Katie found comfort in what's app group. She was part of with other women who'd lost a child to turn her syndrome. Looking back, she said she would not have made the same choice again to keep the pregnancy when she learned about Everley's diagnosis. That was she pointed out to me. She would be forced to continue with the pregnancy under current Texas law.
SPEAKER_05
22:51 - 23:34
What I did the first time was the choice that I made. It was the way that I had control. of this very powerless situation, but I could not go through it again. I know way too much now, Anderson. I would need to have a lot of evidence from my doctors that this wasn't going to play out in my favor, but I would absolutely find a way to close the pregnancy sooner. I can't come up with a right way to say it, but to spare myself and the baby I couldn't do it again.
SPEAKER_03
23:35 - 23:44
Katie wanted to show me the box she was given when she left the hospital. She keeps it and everything else related to Everley in another box her mother gave her.
SPEAKER_05
23:44 - 24:25
This is a box that I have that my mom had whenever I was younger and so in this box is all there is. This is all there is of Everley Grace Talman. So in here I've got Jewelry that people have sent me, this is a sunflower, makes me think of baby bee, and then there's an E. This is from her funeral. So it's got her name, and it's got a Bible verse, her stats, and then if you can see that is her footprint, and her handprint over there.
SPEAKER_03
24:25 - 24:26
What's the Bible verse?
SPEAKER_05
24:28 - 26:11
It says, I praise you because I am fearfully and wonderfully made. Your works are wonderful, wonderful. And I know that full well. It's from Psalms and it's... I needed to remind myself, and it felt very comforting and is that she was perfect. She was fearfully and wonderfully made. Even though she was very, very swollen, she was full of fluid and she was wrapped in cellophane that she was perfect. And I've got my pregnancy test in here. I've got it all because you can't throw it away. I mean, I couldn't throw. anything out, anything, a validation from parking, I've got it. It's all, it all means something. And so, this is a picture of me and Tyler holding, I really, you know. I was obsessed with wanting to get pregnant again. One doctor wanted me to wait a year. Another doctor six months and somehow we settled on four. And then we got, oh, we got pregnant with Luke. Thank you, God. And we found out that Luke was a boy, which was so bittersweet. Like in my mind, I couldn't have it. I couldn't get pregnant with the girl because what if? If I got pregnant with the girl, I'm going to lose her again.
SPEAKER_03
26:11 - 26:12
Turned her syndrome is only in girls.
SPEAKER_05
26:12 - 27:02
Turner syndrome only happens to girls, but I also couldn't have a boy because I never got my girl. You know, I kind of felt like I could ride a wrong by getting pregnant with a girl. I know that sounds. sounds weird and it doesn't sound right. But ultimately, having Luke, I mean, he saved my life. He really, he really did. And then we got pregnant again with Ryan. Another healthy baby and found out it was a boy. Amazing, but I really cried there because, you know, I don't know if we're gonna have more kids. And it was a life long dream I had to be a mother to a little girl. and to have that relationship.
SPEAKER_03
27:02 - 27:08
What have you learned about grief that might help others?
SPEAKER_05
27:08 - 28:06
Well, my favorite quote that helped me a lot and you may have heard this, it's by Jamie Anderson. So it's a grief I've learned is really just love. It's all the love you want to give but cannot. All of that Unspit love gathers up in the corner of your eyes, the lump in your throat, and then that hollow part of your chest. Grief is just love with no place to go. And it's particularly that last sentence. It's just love with no place to go and of course. I grieve because I loved her. She was, she is, she was, and that I'm really grieving a lifetime. I'm grieving everything I lost, all the milestones and all the birthdays, all the seemingly insignificant things, the first days of school.
SPEAKER_03
28:06 - 28:13
One of the things he said is that you, you see her now running in a field.
SPEAKER_05
28:13 - 28:14
No, yeah.
SPEAKER_03
28:16 - 28:17
I love that image.
SPEAKER_05
28:17 - 29:51
No, I love it so much. It's the same image every time. She's around three, four, and we're in a field, and she's in front of me, and she is running as fast as she can and a giggling, and she's wearing a blue dress that's spaghetti strapped, and she looks back at me and smiles. And it's interesting that I don't, I don't view her as a baby. I don't view her as, you know, an adolescent, a teenager and adult. She's just three year old girl running wild in a field. And just like, the feeling of joy and peace that I got in the hospital room that that was a gift. This is the other one. It is huge. I can picture her as she's well. She is well. And I love it. Yeah. I don't see it that often, but like talking about it right now. I see it very clearly. She's running and she's just, she's just a little girl and she's great. And I believe that I do believe that Heaven is like that. I don't think she knows that I'm gone. You know, she looks back and there I am. I'm just right there. I'm right there.
SPEAKER_03
29:51 - 29:54
And you are. You're not gone.
SPEAKER_05
29:54 - 30:31
I can't wait to hug her. You know, they can't wait to hear her voice and hear her laugh. And because there's no sound in the image that I have, she's just running and I know she's laughing. I can't wait to hug her and to have this homecoming and to never let go. You know, to just be there and get to find out if baby B was a boy or girl. I cannot wait. And every single day is one day closer to her. And I have to remember that.
SPEAKER_03
30:31 - 30:34
Okay, thank you so much. Thank you for talking to me.
SPEAKER_05
30:36 - 30:57
Thank you for reaching out for the podcast in general. It's amazing that you can be alone in your house and feel less alone when you're listening to something like this. And thanks for helping continue, I release legacy. Being able to talk about her and share is such a gift for me. So thank you.
SPEAKER_03
31:00 - 31:17
That's all there is for this week. Next week, with the holiday's approaching, which can be difficult for so many of us, I'll talk with Amanda Petrusich, a music writer for the New Yorker, whose husband Brett died suddenly in 2022. She's now figuring out how to raise their young daughter on her own.
SPEAKER_01
31:18 - 31:35
How do I let my daughter see me greeting? How do I encourage her to understand that grief is normal, that grief is love, but also to make sure that she knows that I'm gonna be okay and she is gonna be okay. I think that the work of that is exhausting.
SPEAKER_03
31:35 - 32:09
That's next week on all there is. Thanks for listening. All there is is a production of Sinan Audio, the show is produced by Grace Walker and Dan Bloom. Our senior producers are haily Thomas and Felicia Patinkin. Dan DeZoula is our technical director and Steve Lickty is the executive producer of Sinan Audio. Support from Charlie Moore, Kerry Rubin, Shimmeridge Sheetree, Ronnie Betis, Alex Maniserry, Robert Mathers, John Tionora, Lini Steinhard, James Andreys, Nicole Pesaru, and Lisa Namrow. Special thanks to Katie Hinman.